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Quality of Life and Human Difference

Genetic Testing, Health Care, and Disability

Specificaties
Paperback, 286 blz. | Engels
Cambridge University Press | 2005
ISBN13: 9780521539715
Rubricering
Cambridge University Press e druk, 2005 9780521539715
Onderdeel van serie Cambridge Studies in
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Samenvatting

This study brings together two important literatures together in the one volume. One concerns the role of quality assessments in social policy, especially health policy. The second concerns ethical and social issues raised by prenatal testing for disability. Hitherto, these two literatures have had little contact with each other: few scholars have written about both, or have compared the two domains in a systematic way, while people with disabilities and disability scholars are underrepresented in recent discussion on health policy and quality of assessment. This book turns the perspectives of disability scholars on issues that have largely been the province of health methodology, policy and philosophy, while angling philosophical policy analysis on problems that have largely been the province of disability scholarship. This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and healthcare economics.

Specificaties

ISBN13:9780521539715
Taal:Engels
Bindwijze:Paperback
Aantal pagina's:286

Inhoudsopgave

Contributors; Acknowledgements; Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit; 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit; 2. Predicting genetic disability while commodifying health Anita Silvers; 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock; 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson; 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord; 6. Preventing the existence of people with disabilities Jeff McMahan; 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman; 8. The social context of individual choice Tom Shakespeare; 9. Disability and health systems assessment Jerome Bickenbach; Index.
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        Quality of Life and Human Difference